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Zaburzenia rozwoju mowy dzieci z nieprawidłowościami w budowie czaski

100%

Larysz D.

nr Logopedia Silesiana nr 1

47-60

Speech therapy should be an integral part of the support for children with craniosynostosis. Knowledge and research pathological deformation of the head in children are presented in this article. Needs should not only focus on the improvement of cranial distortion that results from premature closure of the sutures between the bone of the skull, but also focus on improving the quality of life of patients and their families. Speech and language therapy for children with deformities of the skull and face, requires in-depth knowledge of a speech therapist and therapeutic treatment should be started on the exact type of exercise to adapt to the needs of speech therapy.

PERCEPTION OF CHILDREN WITH CRANIOFACIAL MICROSOMIA ABNORMALITIES BY THEIR CLOSE RELATIVES

100%

Milska K. A. , Mański A. , Wierzba J.

tom 18(3)

367-381

When a child is born with a deformed face, his/her social environment is quickly confronted with a change which undoubtedly favours numerous over-generalizations. Children with craniofacial microsomia anomalies (CFCs) may experience less social support, more rejection and make them withdraw from their social life more frequently. The purpose of this research study is to show how children with craniofacial hypoplasia abnormalities is perceived by their close relatives. The sample of this study consisted of 26 participants (F=16; M=10). This research study was conducted using the following questionnaire methods: the Scale of Over-Generalization Effect by K. Milska and A. Mański (SOGE), modified Own Health Assessment Scale method (SOWC) and the Authors-Designed Questionnaire (ADQ) to obtain information on the issue. A child's illness always affects a variety of family life spheres. Most of the surveyed women did not experience any complication during pregnancy or childbirth. Unfortunately, after their child was diagnosed, most adults were not offered getting in contact with a psychologist / psychiatrist / psychotherapist. Some relatives - after the birth of a child with craniofacial microsomia (CFM) - reduced their working hours or gave up work completely in order to take care of the child. The most urgent needs for this child's illness reported by adults most often referred to educational and financial matters. At the time of this research study, most of the respondents (61%) - upon the birth of a child with CFM - considered it plausible to enlarge their family. As a result of the conducted research studies, new variable systems (a type and character of dysmorphia, closeness - distance) were identified, which may be a relevant element to facilitate research studies on the perception of children with body deformities by their environment. In the characteristics of a child with CFM, it was shown that his/her close relatives evaluate the child positively. Family members apply constructive strategies for coping with the child's illness, however, the research study results indicate the legitimacy of introduction of psychological and psychiatric consultations for close relatives to the standards of CFM child treatment.

Samoocena oraz poczucie samotności rodzeństwa dzieci i młodzieży z zaburzeniami neurorozwojowymi

72%

Stochła-Smalarz P. , Gosztyła T.

nr 53(3)

95-105

The aim of the study was to initially diagnose the self-esteem of adolescents having siblings with neurodevelopmental disorders and search for the relationship of this variable with the sense of loneliness, gender and age. The analyzes included results obtained from 80 neurotypical adolescents with sisters or brothers with neurodevelopmental disorders such as: autism spectrum disorder, intellectual disability, attention deficit hyperactivity disorder, motor disorders, communication disorders and Tourette’s syndrome. The following measures were used: Rosenberg Self-Esteem Scale (SES) adapted by Mariola Łaguna, Kinga Lachowicz-Tabaczek and Irena Dzwonkowska (2007); De Jong Gierveld Loneliness Scale (DJGLS) in the Polish adaptation of Paweł Grygiel et al. (2013) and a self-designed questionnaire. The results of the study indicate a negative relationship between the sense of loneliness and self-esteem in the studied group and a negative relationship between self-esteem and age. In the light of these results supportive interventions for youth who have siblings with neurodevelopmental disabilities are indicated.

Celem badań była wstępna diagnoza samooceny nastolatków mających rodzeństwo z zaburzeniami neurorozwojowymi, a także poszukiwanie związku tej zmiennej z poczuciem samotności, płcią oraz wiekiem. Do analiz zakwalifikowano wyniki uzyskane od 80 neurotypowych adolescentów, mających siostry lub braci z takimi zaburzeniami neurorozwojowymi, jak: spektrum autyzmu, niepełnosprawność intelektualna, zespół deficytu uwagi i nadpobudliwości ruchowej, zaburzenia motoryczne, zaburzenia w komunikowaniu się i zespół Tourette’a. Zastosowano następujące narzędzia badawcze: Skalę Samooceny Morrisa Rosenberga (SES) w adaptacji Marioli Łaguny, Kingi Lachowicz-Tabaczek i Ireny Dzwonkowskiej (2007); Skalę Samotności de Jong Gierveld (DJGLS) w polskiej adaptacji Pawła Grygiela i współpracowników (2013) oraz kwestionariusz ankiety w opracowaniu własnym. Wyniki badań wskazują na negatywny związek poczucia samotności i samooceny w badanej grupie oraz negatywny związek samooceny z wiekiem. W ich świetle wskazane są działania wspierające młodzież mającą rodzeństwo z zaburzeniami rozwoju.