We are more alike than you think. Age distribution of the quality of life among persons with and without disabilities

• Autorzy: Radosław Antczak , Izabela Grabowska , Jan Zwierzchowski , Tomasz Panek
• Języki publikacji: EN

Abstrakty

EN

Purpose: In this article we apply the age perspective to assess the quality of life (QoL) of persons with disabilities. Using a single measurement tool, we compare age profiles in the quality of life of persons with disabilities to the population without disabilities. By doing so, we examine whether the general patterns (such as U-shaped profile) are observed also among the population with disabilities, hence assessing how heterogenous this group is. Methods: We have constructed a multidimensional measurement model identifying overall and nine dimensions of the quality of life using structural equation modelling. The model conceptually is based on the Eurostat guidelines. All analyses are based on EU-SILC survey data, carried out in Poland in 2015. Results: The quality of life for both groups has inverse, right-skewed U-shape. The maximum value is achieved for the age group of 30-34 and after this threshold a constant decline is observed. The QoL scores for the population with disabilities are obviously significantly lower. Additionally, they are more heterogenous, and with greater variation between men and women. In a majority of the domains we also observe lower scores for persons with disabilities. However, people with disabilities are similarly diversified by age as persons without disabilities. Conclusion: Our study suggests that people with disabilities are similarly diversified by age as persons without disabilities. Therefore, disability means something different for younger and older persons and this difference is reflected in their quality of life. It means that public policy for persons with disabilities should also be diversified, avoiding 'one-for-all' policy. (original abstract)

Słowa kluczowe

PL

Jakość życia; Osoby niepełnosprawne; Ludność

EN

Quality of life; Disabled people; Population

• Czasopismo: Studia Demograficzne
• Rocznik: 2020
• Numer: nr 2(178)
• Strony: 75-105

Twórcy

autor

Radosław Antczak

• Warsaw School of Economics, Poland

autor

Izabela Grabowska

• Warsaw School of Economics, Poland

autor

Jan Zwierzchowski

• Warsaw School of Economics, Poland

autor

Tomasz Panek

• Warsaw School of Economics, Poland

Bibliografia

• Addabbo, T., Sarti, E., Sciulli, D. (2016). Disability and Life Satisfaction in Italy. "Applied Research Quality Life", 11, 925-954, https://doi.org/10.1007/s11482-015-9412-0
• Angelini, V., Cavapozzi, D., Corazzini, L., Paccagnella, O. (2012). Age, Health and Life Satisfaction Among Older Europeans. "Social Indicators Research", 105 (2), 293-308. DOI:10.1007/s11205-011-9882 x.
• Bak, E, Wojtuń, S., Gil, J., Dyrla, P. (2013). Znaczenie wybranych kwestionariuszy w ocenie jakości życia pacjentow z chorobą refleksową przełyku. "Problemy Pielęgniarstwa", 21 (4), 552-554.
• Bąk-Drabik, K., Ziora, D. (2010). Wpływ statusu socjoekonomicznego na jakość życia chorych na przewlekłą obturacyjną chorobę płuc." Pneumonologia i Alergologia Polska", 78 (1), 3-13.
• Bălţătescu, S. (2014). Gender and Age Differences in Subjective Well-being: Romania 1990-2005. In: E. Eckermenn (Ed.), Gender, Lifespan, Cultural Context and QOL. An International Perspective. "Social Indicators Research Series", 53 (pp. 99-114). Dordrecht: Springer.
• Basu, K., Lopez-Calva, L. (2011). Functionings and capabilities. In: K. Arrow, A. Sen, K. Suzumura (Eds.), Handbook of social choice and welfare (pp. 153-187). Elsevier, https://econpapers.repec.org/bookchap/eeesoches/2.htm
• Beigi, A. B., Cheng, K. K. Y. (2010). Rethinking Gender in Disability Issues. "Sex Disabil", 28, 205-207, https://doi.org/10.1007/s11195-010-9154-8
• Berger-Schmitt R., Noll H. H. (2000). Conceptual framework and structure of a European System of Social Indicators. EuReporting Working Paper 9, Centre for Survey Research and Methodology (ZUMA), Mannheim.
• Blanchflower, D. G., Oswald, A. J. (2004). Well-being over time in Britain and the USA. "Journal of Public Economics", 88 (7-8), 1359-1386. DOI:10.1016/S0047-2727 (02) 00168-8.
• Blanchflower, D. G., Oswald, A. J. (2008). Is well-being U-shaped over the life cycle? "Social Science & Medicine", 66 (8), 1733-49. DOI:10.1016/j.socscimed.2008.01.030
• Bohnke, P., Kohler, U. (2010). Well-being and inequality. In: S. Immerfall, G. Therborn (Eds.), Handbook of European societies. Social transformations in the 21st century (pp. 629-666). New York, NY: Springer. DOI:10.1007/978-0-387-88199-7.
• Campos, A., Ferreira, E., & Vargas, A. (2014). Aging, Gender and Quality of Life (AGEQOL) study: factors associated with good quality of life in older Brazilian community-dwelling adults. "Health Qual Life Outcomes", 12, 166, https://doi.org/10.1186/s12955-014-0166-4
• Cantril, H. (1965). The pattern of human concern. New Brunswick, New Jersey: Rutgers.
• Carmel, S. (2001). The will to live: gender differences among elderly persons. "Social Science & Medicine", 52 (6), 949-958.
• Carmel, S. (2011). The will to live as an indicator of well-being and predictor of survival in old age. In: L. W. Poon, J. Cohen-Mansfield (Eds.), Understanding well-being in the oldest old (pp. 281-289). Cambridge: Cambridge University Press, https://doi.org/10.1017/CBO9780511920974.017
• Chrobak, M. (2009). Ocena jakości życia zależnej od stanu zdrowia. "Problemy Pielęgniarstwa", 17 (2), 126.
• Cieślik, B., Podbielska, H. (2015). A survey of the quality of life questionnaires. "Acta Bio-Optica et Informatica Medica Inżynieria Biomedyczna", 21 (2), 102-135.
• Clark, A. E. (2007). Born to be mild? Cohort effects don't (fully) explain why well-being is U-shaped in age. Institute for the Study of Labor (IZA) Discussion Paper No. 3170.
• Clark, A., Oswald, A. (2006). The curved relationship between subjective well-being and age. PSE Working Paper No 2006-29 halshs-00590404.
• Colver, A. (2009). Quality of life and participation. Dev Med Child Neurol, 51, 656-659.
• Cummins, R. A. (2005). Moving from the quality of life concept to a theory. "Journal of Intellectual Disability Research", 49, 699-706.
• Dear, K., Henderson, S., Korten, A. (2002). Well-being in Australia-findings from the national survey of mental health and well-being. "Social Psychiatry and Psychiatric Epidemiology", 37 (11), 503-509. DOI:10.1007/s00127-002-0590-3.
• Deaton, A. (2008). Income, health, and well-being around the world: evidence from the Gallup World Poll. "Journal of Economic Perspectives", 22 (2), 53-72.
• Diamantopoulos, A., Siguaw, J. A. (2006). Formative vs. reflective indicators in measure development: Does the choice of indicators matter?" British Journal of Management", 17, 263-282.
• Dijkers, M. P. (2010). Issues in the conceptualization and measurement of participation: an overview. "Arch Phys Med Rehabil", 91 (9 Suppl.), 5-16.
• Easterlin, R. (2006). Life cycle happiness and its sources: intersections of psychology, economics, and demography." Journal of Economic Psychology", 27 (4), 463-482.
• Easterlin, R., Sawangfa, O. (2007). Happiness and domain satisfaction: theory and evidence. IZA Discussion Paper No. 2584.
• Eckermenn, E. (Ed.) (2014). Gender, Lifespan, Cultural Context and QOL. An International Perspective." Social Indicators Research Series", 53, Dordrecht: Springer.
• Edwards, J. R., Bagozzi, R. P. (2000). On the nature and direction of relationships between constructs and measures. "Psychological Methods", 5, 155-174.
• Eurofound (2019). Age and quality of life: Who are the winners and losers? Luxembourg: Publications Office of the European Union.
• Eurostat (2011). Sponsorship Group on Measuring Progress. Well-being and Sustainable Development. Final Report adopted by the European Statistical System Committee. Retrieved from: http://epp.eurostat.ec.europa.eu (accessed: 2 March, 2020).
• Eurostat (2016). Final report of the expert group on quality of life indicators. Luxembourg: Publications Office of the European Union.
• Felce, D. (1997). Defining and applying the concept of quality of life." Journal of Intellectual Disability Research", 41, 126-135.
• Ferrans, C. E. (2005). Definitions and Conceptual Models of Quality of Life. In: J. Lipscomb, C. C. Gotay, C. Snyder, C. (Eds.), Outcomes Assessment in Cancer. Measures, Methods, and Application (pp. 14-30). Cambridge: Cambridge University Press.
• Freedman, V. A., Stafford, F., Schwarz, N., Conrad, F., Cornman, J. C. (2012). Disability, participation, and subjective well-being among older couples." Social Science & Medicine", 74 (4), 588-596, https://doi.org/10.1016/j.socscimed.2011.10.018
• Frijters, P., Beatton, T. (2012). The mystery of the U-shaped relationship between happiness and age. "Journal of Economic Behavior & Organization", 82 (2-3), 525-542. DOI:10.1016/j.jebo.2012.03.008.
• Gerdtham, U. G., Johannesson, M. (2001). The relationship between happiness, health, and socio-economic factors: results based on Swedish micro data." Journal of Behavioral and Experimental Economics", 30 (6), 553-557.
• Geue, K., Sender, A., Schmidt, R. (2014). Gender-specific quality of life after cancer in young adulthood: a comparison with the general population. "Qual Life Res", 23, 1377-1386, https://doi.org/10.1007/s11136-013-0559-6
• Geyh, S., Cieza, A., Kollerits, B., Grimb, G., Stucki, G. (2007). Content comparison of health-related quality of life measures used in stroke based on the international classification of functioning, disability, and health (ICF): a systematic review. "Quality of Life Research", 16 (5), 833-851.
• Gilroy, R. (2006). Taking a Capabilities Approach to Evaluating Supportive Environments for Older People." Applied Research Quality Life", 1, 343-356, https://doi.org/10.1007/s11482-007-9025-3
• Gnacińska-Szymańska, M, Dardzińska, J. A, Majkowicz, M, Małgorzewicz, S. (2012). Ocena jakości życia osob z nadmierną masą ciała za pomocą formularza WHOQOL-BREF. "Endokrynologia, Otyłość i Zaburzenia Przemiany Materii", 8 (4), 137.
• Gwozdz, W., Sousa-Poza, A. (2010). Ageing, health, and life satisfaction for the oldest old: an analysis for Germany. "Social Indicators Research", 97 (3), 397-417.
• Helliwell, J. F. (2003). How's life? Combining individual and national variables to explain subjective well-being. "Economic Modelling", 20 (2), 331-360.
• Hornslien, A. G., Sandset, E. C., Bath, P. M., Wyller, T. B., Berge, E. (2013). Effects of Candesartan in Acute Stroke on Cognitive Function and Quality of Life Results from the Scandinavian Candesartan Acute Stroke Trial. "Stroke", 44, 2022-2023.
• Jankowska-Polańska, B., Polański, J. (2014). Metody oceny jakości życia w schorzeniach reumatycznych. "Reumatologia", 52 (1), 69-71, 74.
• Jespersen, L. N., Michelsen, S. I., Holstein, B. E., Tine Tjornhoj-Thomsen, T., Due, P. (2018). Conceptualization, operationalization, and content validity of the EQOL-questionnaire measuring quality of life and participation for persons with disabilities. "Health and Quality of Life Outcomes", 16, 199. DOI:10.1186/s12955-018-1024-6.
• Kaliterna, L., Burusic, J. (2014). Age and Gender Differences in Well-being in Croatia. In: E. Eckermenn (Ed.), Gender, Lifespan, Cultural Context and QOL. An International Perspective. Social Indicators Research Series, 53 (pp. 199-219). Dordrecht: Springer.
• Karr, V. (2011). A life of quality: informing the UN convention on the rights of persons with disabilities. "Journal of Disability Policy Studies", 22, 66-82.
• Kassenboehmer, S. C., Haisken-DeNew, J. P. (2012). Heresy or enlightenment? The well-being age U-shape effect is flat." Economic Letters", 117 (1), 235-238.
• Kelley-Gillespie, N. (2009) An Integrated Conceptual Model of Quality of Life for Older Adults Based on a Synthesis of the Literature." Applied Research Quality Life", 4, 259-282.
• Kłak, A., Mińko, M., Siwczyńska, D. (2012). Metody kwestionariuszowe badania jakości życia. "Problemy Higieny i Epidemiologii", 93 (4), 632-635.
• La Grow, S., Alpass, F., Stephens, C., Towers, A. (2011). Factors affecting perceived quality of life of older persons with self-reported visual disability." Quality of Life Research", 20 (3), 407-413.
• Laranjeira, C. A. (2008). The dilemmas of the "quality of life" concept in psychological practice. "Psychologia", 51, 304-18.
• Leveille, S. G., Resnick, H. E. Balfour, J. (2000). Gender differences in disability: Evidence and underlying reasons. "Aging Clin Exp Res", 12, 106-112, https://doi.org/10.1007/BF03339897
• Lopez Ulloa, B. F., Moller, V., Sousa-Poza, A. (2013). How does subjective well-being evolve with age? A literature review. "Journal of Population Ageing", 6 (3), 227-246. DOI:10.1007/s12062-013-9085-0.
• Luna, N. MacMillan, T. (2015) The relationship between spirituality and depressive symptom severity, psychosocial functioning impairment, and quality of life: examining the impact of age, gender, and ethnic differences." Mental Health, Religion & Culture", 18:6, 513-525. DOI:10.1080/13674676.2015.1087481.
• Maggino, F., Zumbo, B. D. (2012). Measuring the Quality of Life and the Construction of Social Indicators. In: K. C. Land, A. C. Michalos, M. J. Sirgy (Eds)., Handbook of Social Indicators and Quality of Life Research (pp. 201-238). New York: Springer.
• McAdams, K. K., Lucas, R. E., Donnellan, M. B. (2012). The role of domain satisfaction in explaining the paradoxical association between life satisfaction and age." Social Indicators Research", 109 (2), 295-303, https://doi.org/10.1007/s11205-011-9903-9
• Mercier, C., Peladeau, N. Tempier, R. (1998). Age, Gender and Quality of Life. "Community Ment Health J", 34, 487-500, https://doi.org/10.1023/A:1018790429573
• Mortimer, J., Shanahan, M. (Eds.) (2003). Handbook of the Life Course. Handbooks of Sociology and Social Research. Springer US: New York.
• Neubert, D. (2019). Patterns of Individual Social Positioning: Gender, Age and Disability. In: Neubert. Inequality, Socio-cultural Differentiation and Social Structures in Africa. Cham: Palgrave Macmillan, 199-234.
• Palmore, E., Luikart, C. (1972). Health and social factors related to life satisfaction. "Journal of Health and Social Behavior", 13 (1), 68-80.
• Panek, T. (2016). Jakość życia. Od koncepcji do pomiaru. Warszawa: Oficyna Wydawnicza Szkoła Głowna Handlowa w Warszawie.
• Renwick, R., Brown, I., Nagler, M. (1996). Quality of life in health promotion and rehabilitation: Conceptual approaches. issues. and applications. Thousand Oaks, CA: Sage.
• Schalock, R. L., Keith, K. D., Verdugo, M. A., Gomez, L. E. (2010). Quality of life model development and use in the field of intellectual disability. In: R. Kober (Ed.), Quality of life: theory and implementation (pp. 17-32). New York: Sage.
• Sen, A. (1985). Commodities and capabilities. Amsterdam: North-Holland.
• Sen, A. (1992). Inequality Re-examined. Oxford: Clarendon Press.
• Simoes, C., Santos, S. (2017). The Impact of Personal and Environmental Characteristics on Quality of Life of People with Intellectual Disability. "Applied Research Quality Life", 12, 389-408, https://doi.org/10.1007/s11482-016-9466-7
• Sirgy, M. J. (2012). The Psychology of Quality of Life. Hedonic Well-Being, Life Satisfaction, and Eudaimonia. Springer Science & Business Media, https://www.springer.com/gp/book/9789400744042
• Socha, B., Kutnohorska, J., Zielińska, M., Kowalik, J., Kopański, Z., Skura-Madziała, A., Tabak, J. (2011). Jakość życia uwarunkowana stanem chorego. "Journal of Public Health, Nursing and Medical Rescue", 2, 6-7.
• Speight, J., Reaney, M. D., Barnard, K. D. (2009). Not all roads lead to Rome-a review of quality of life measurement in adults with diabetes. "Diabetic Medicine", 26 (4), 315-327. DOI:10.1111/j.1464-5491.2009.02682.x.
• Stiglitz, J. E., Sen, A., Fitoussi, J. P. (2009). Report by the Commission on the Measurement of Economic Performance and Social Progress. Retrieved from: www.stiglitz-sen-fitoussi.fr (accessed 20 May, 2020).
• Stone, A. A., Schwartz, J. E., Broderick, J. E., Deaton, A. (2010). A snapshot of the age distribution of psychological well-being in the United States. PNAS, June 1, 107 (22), 9985-9990, https://doi.org/10.1073/pnas.1003744107
• Taft, C., Magnusson, E. S., Ekstedt, G., Malmgren, K. (2014). Health-related quality of life, mood, and patient satisfaction after epilepsy surgery in Sweden - a prospective controlled observational study. "Epilepsia", 55 (6), 878-882.
• Tiefenbach, T., Kohlbacher, F. (2014). Subjective Well-being Across Gender and Age in Japan: An Econometric Analysis. In: E. Eckermenn, (Eds.), Gender, Lifespan, Cultural Context and QOL. An International Perspective. Social Indicators Research Series, 53, Dordrecht: Springer.
• Turska, W, Skowron, A. (2009). "Metodyka oceny jakości życia, Farmakoekonomika", 65 (8), 572-574, 577-579.
• Van Landeghem, B. (2012). A test for convexity of human well-being over the lifecycle: longitudinal evidence from a 20 year panel. "Journal of Economic Behavior & Organization", 81 (2), 571-582, https://doi.org/10.1016/j.jebo.2011.08.001
• Verdugo, M. A., Gomez, L. E., Schalock, R. L., Arias, B. (2010b). The Integral Quality of Life Scale: development. validation. and use. In: R. Kober (Ed.), Enhancing the Quality of Life of People with Intellectual Disabilities: From Theory to Practice. (pp. 47-60). Dordrecht: Springer.
• WHO (1997). WHOQOL Measuring quality of life. Geneva: World Health Organization.
• Wielgosz, R, Mroczkowski, E. (2015). Metody oceny jakości życia pacjentow z przewlekłym zapaleniem nosa i zatok." Acta Bio-Optica et Informatica Medica Inżynieria Biomedyczna", 21 (2), 130.
• Wiener, J. M., Hanley, R. J., Clark, R., Van Nostrand, J. F. (1990). Measuring the Activities of Daily Living: Comparisons Across National Surveys. "Journal of Gerontology", 45 (6), S229 S237.
• Wroblewska, W., Wroblewski, Ł. (2007), Jakość życia ludności uwarunkowana stanem zdrowia. "Wiadomości Statystyczne", 6, 41-50.
• Zwierzchowski, J., Panek, T. (2020). Measurement of Subjective Well-being under Capability Approach in Poland. "Polish Sociological Review", 2 (2010), 157-178.

Identyfikatory

DOI

https://doi.org/10.33119/SD.2020.2.3