Zmiany dotychczasowego stylu życia pod wpływem leczenia dietą bezglutenową w celiakii. Przyczynek do badań

• Autorzy: Małgorzata Pietras-Mrozicka

Warianty tytułu

Changes to Past Lifestyles as a Result of No n-Gluten Dietary Treatment in Coeliac Disease: a Contribution to Further Research

• Języki publikacji: PL

Abstrakty

Celem tego artykułu jest przedstawienie, w jaki sposób przestrzeganie do końca życia diety bezglutenowej jako jedynego sposobu leczenia wpływa na codzienność i wymusza zmiany dotychczasowego stylu życia osób ze zdiagnozowaną celiakią. Główne pytanie badawcze brzmi: czy i jak dieta zmienia sposób funkcjonowania psychospołecznego osób z celiakią? (fragment tekstu)

EN

Strict adherence to any elimination diet changes past styles of life of people. It refers especially to the ones who are obliged to introduce a diet because of a diagnosis of food-related illnesses, such as coeliac disease (CD). The constraints perceived by the individuals on a dietary regimen may have a negative infl uence on their psychosocial functioning. The diffi culties are usually experienced in the situations connected with public consumption like social events and family gatherings. The article is an attempt to analyze how the implementation of a restrictive diet affects the past lifestyle of people diagnosed with CD. The only way of treatment of CD is a strict and lifelong elimination of gluten. The results presented are based on literature and a survey carried out on a group of forty people diagnosed with CD, recruited among the members of The Polish Association of People with Coeliac Disease and on a Gluten Free Diet (GFD). The research tool was a socio-demographic and medical questionnaire of own authorship. The character of the survey was just preliminary as it is going to be followed by a further in-depth qualitative research in the future. The results of the analysis suggest that introducing a GFD may result in a worsening of psychosocial functioning of the suff erers, nevertheless some noticeable improvements in their somatic health. This explains why expanding the social awareness of the diffi culties experienced by people forced to undertake a GFD as a treatment is an important issue. It may contribute to the implementation of some good practices aimed at better quality of life of coeliac suff erers and elimination of barriers to regimen adherence they meet. It is of crucial importance as untreated CD may result in a gradual deterioration of their health status and occurrence of other serious diseases. Thus, supporting the suff erers of CD in adherence to dietary restrictions enhances their chances of maintaining an active style of life and more equal participation in social life. (original abstract)

Słowa kluczowe

PL

Styl życia; Zachowania konsumenta; Żywienie dietetyczne

EN

Lifestyle; Consumer behaviour; Dietary feeding

• Czasopismo: Ekonomia - Wroclaw Economic Review
• Rocznik: 2017
• Numer: tom 23, nr 4
• Strony: 179-193

Twórcy

autor

Małgorzata Pietras-Mrozicka

• Uniwersytet Łódzki

Bibliografia

• Arigo D., Anskis A.M., Smyth J.M. (2012), Psychiatric comorbidities in women with Celiac Disease, "Chronic Illnes" 8, nr 1, s. 45-55.
• Bellini A. et al. (2011), Compliance with the gluten-free diet: The role of locus of control in Celiac Disease, "Journal of Pediatrics" 158, nr 3, s. 463-466.
• Cichańska B.A. (2013), Celiakia. Dieta bezglutenowa. Niezbędne informacje i porady, Bydgoszcz.
• Dewar D.H., Ciclitira P.J. (2005), Clinical features and diagnosis of Celiac Disease, "Gastroenterology" 128, nr 4/1, s. 19-24.
• Farage P., Zandonadi R. (2014), The gluten-free diet: Diffi culties Celiac Disease patients have to face daily, "Austin Journal of Nutr ition and Food Sciences" 2 (5), s. 1027, http://austinpublishinggroup.com/nutrition-food-sciences/fulltext/ajnfs-v2-id1027.php (dostęp: 23.01.2017).
• Gazzola A. (2011), Celiac Disease: What You Need to Know, London. Green P., Jabri R. (2006), Coeliac Disease, "Annual Review of Medicine" 57, s. 207-221.
• Holmes S. (2010), Coeliac Disease: Symptoms, complications and patient support, "Nursing Standard" 24 (35), s. 50-56.
• Jacobsson L.R. et al. (2012), Coeliac Disease - women's experiences in everyday life, "Journal of Clinical Nursing" 21, s. 3442-3450.
• Karwautz A. et al. (2008), Eating pathology in adolescents with Celiac Disease, "Psychosomatics" 49, s. 299-306.
• Laine E. (2015), Supporting the psychological and social well-being of people with Coeliac Disease, "Finnish Coeliac Society", http://www.slideshare.net/Keliakialiitto/supporting-the-psychological-and-social-well-being-of-people-with-coeliac-disease-eeva-laine (dostęp: 20.01.2017).
• Lee A., Newman J.M. (2003), Celiac diet: its impact on quality of life, "Journal of the American Dietetic Association" 103, nr 11, s. 1533-1535.
• Leffler D.A. et al. (2009), A simple validated gluten-free diet adherence survey for adults with Celiac Disease, "Clinical Gastroenterology and Hepatology" 7, s. 530-536.
• Marklund B. et al. (2007), Adolescents' experiences of being food-hypersensitive: a qualitative study, "BMC Nursing" 6/8, http://bmcnurs.biomedcentral.com/articles/10.1186/1472-6955-6-8 (dostęp 30.03.2016).
• McQuestion M., Fitch M., Howell D. (2011), The changed meaning of food: Physical, social and emotional loss for patients having received radiation treatment for head and neck cancer, "European Journal of Oncology Nursing" 15, s. 145-151.
• Ostrowska A. (1999), Styl życia a zdrowie: z zagadnień promocji zdrowia, Warszawa.
• Passananti V. et al. (2013), Prevalence of eating disorders in adults with Celiac Disease, "Gastroenterology Research and Practice", http://dx.doi.org/10.1155/2013/491657 (dostęp: 20.01.2017).
• Pelegrí Calvo C., Soriano Del Castillo J.M., Manes Vinuesa J. (2012), Calidad de vida y proceso diagnóstico en celíacos adultos de la Comunidad Valenciana, "Nutrición Hospitalaria" 27, nr 4, s. 1293-1297, http://scielo.isciii.es/scielo.php?script=sci_arttext&pid=S0212-16112012000400048&lng=en&nrm=iso&tlng=en (dostęp: 28.03.2016).
• Respondek W. (2010), Zespół jelita nadwrażliwego a nietolerancja glutenu, Warszawa.
• Rose C., Howard R. (2014), Living with Coeliac Disease: A grounded theory study, "Journal of Human Nutrition and Dietetics" 27, s. 30-40.
• Rujner J., Cichańska B.A. (2005), Dieta bezglutenowa i bezmleczna dla dzieci i dorosłych, Warszawa.
• Sainsbury K., Mullan B. (2011), Measuring beliefs about gluten free diet adherence in adult Coeliac Disease using the theory of planned behaviour, "Appetite" 56, s. 476-483, http://www. sciencedirect.com/science/article/pii/S0195666311000432 (dostęp: 15.03.2016).
• Satherley R., Howard R., Higgs S. (2015), Disordered eating practices in gastrointestinal disorders, "Appetite" 84 C, s. 240-250.
• Schütz A. (2008), O wielości światów. Szkice z socjologii fenomenologicznej, Kraków.
• Siciński A. (1978), Styl życia. Przemiany we współczesnej Polsce, Warszawa.
• Stjerna M.L. (2015), Food, risk and place: Agency and negotiations of young people with food allergy, "Sociology of Health and Illness" 37, nr 2, s. 284-297, http://onlinelibrary.wiley.com/ doi/10.1111/1467-9566.12215/abstract (dostęp: 31.03.2016).
• Tully M.A. (2008), Pediatric Celiac Disease, "Gastroenterology Nursing" 31, nr 2, s. 132-140.
• Ukkola A. et al. (2012), Patients' experiences and perceptions of living with Coeliac Disease - implications for optimizing care, "Journal of Gastrointestinal and Liver Diseases" 21, nr 1, s. 17-22, https://www.ncbi.nlm.nih.gov/pubmed/22457855 (dostęp: 17.01.2017).
• Van Hees N., Van Der Does W., Giltay E.J. (2013), Coeliac Disease, diet adherence and depressive symptoms, "Journal of Psychosomatic Research" 74, s. 155-160.
• Veen M. et al. (2013), If you can't eat what you like, like what you can: How children with Coeliac Disease and their families construct dietary restrictions as a matter of choice, "Sociology of Health & Illness" 35, nr 4, s. 592-609.
• Wagner G. et al. (2015), Eating disorders in adolescents with Celiac Disease: Influence of personality characteristics and coping, "European Eating Disorders Review" 23, nr 5, s. 361-370, http://www.ncbi.nlm.nih.gov/pubmed/26100655 (dostęp: 28.03.2016).
• White L.E., Bannerman E., Gillett P.M. (2016), Coeliac Disease and the gluten-free diet: A review of the burdens; factors associated with adherence and impact on health-related quality of life, with specific focus on adolescence, "Journal of Human Nutrition and Dietetics" 29, s. 593-606.
• Zarkadas M. et al. (2006), The impact of a gluten-free diet on adults with Coeliac Disease: Results of a national survey, "Journal of Human Nutrition and Dietetics" 19, nr 1, s. 41-49.

Identyfikatory

DOI

10.19195/2084-4093.23.4.14