Influence of the COVID-19 Pandemic on Therapy Delivery for Children with ASD: Parental Evaluation of Participation, Significance for Functioning and Satisfaction

• Authors: Monika Skura , Weronika Lorens-Rosa , Anna Steinhagen

Abstracts

PL

W naszym badaniu chcemy ustalić, jak rodzice dzieci ze spektrum autyzmu oceniali terapię swojego dziecka w trakcie i przed pandemią. Próbujemy określić udział dzieci w terapii, zmianę częstotliwości, formy i rodzaju terapii, rodzicielską ocenę kompetencji i satysfakcji z terapii. W tym celu posłużyłyśmy się kwestionariuszem ankiety. Wyniki pokazały, że prawie wszystkie dzieci uczestniczyły w terapii w tym okresie pomimo ograniczeń spowodowanych pandemią. Zmniejszyła się jednak liczba godzin terapii dzieci przebywających w placówkach, a zwiększyła zdalnie. Efektywność prowadzonych terapii zmniejszyła się w porównaniu z okresem sprzed pandemii. Najbardziej negatywne zmiany w funkcjonowaniu dzieci wystąpiły w obszarach funkcjonowania społecznego, sensorycznego i integracji sensorycznej. Wyniki badań wykazały, że kompetencje rodziców albo wzrosły, albo utrzymały się na tym samym poziomie, natomiast ich satysfakcja z terapii dziecka znacząco spadła w czasie pandemii.

EN

In our study, we wanted to determine how parents of children on the autistic spectrum, assessed their child's therapy during and before the pandemic. We tried to determine the children's participation in therapy, the change in frequency, the form and type of therapy, parental evaluation of competence and satisfaction with the therapy. For this purpose, we used a questionnaire. The results showed that almost all children participated in therapy during this period despite the limitations caused by the pandemic. However, the number of hours of therapy provided to children in institutions decreased, while that provided remotely increased. The effectiveness of the conducted therapies decreased compared to the time before the pandemic. The most negative changes in children's functioning occurred in the areas of social functioning, sensory and sensory integration. The results showed that the competence of the parents either increased or held at the same level, whilst their satisfaction in their child's therapy significantly decreased during the pandemic.

Keywords

PL

rodzice dzieci z ASD; terapia dzieci z ASD; usługi terapeutyczne; COVID-19

EN

parents of children with ASD; therapy for children with ASD; Therapy services; COVID-19

• Publisher: Uniwersytet Kardynała Stefana Wyszyńskiego w Warszawie
• Journal: Forum Pedagogiczne
• Year: 2023
• Volume: 13
• Issue: 1
• Pages: 301-317

Dates

published

2023

Contributors

author

Monika Skura

• University of Warsaw, Poland

• https://orcid.org/0000000225062107

author

Weronika Lorens-Rosa

• Children’s Health Memorial Centre Institute, Poland

• https://orcid.org/0000000165852579

author

Anna Steinhagen

• Psychological and Pedagogical Counseling Center No. 16 in Warsaw, Poland

• https://orcid.org/0000000233340867

References

• Ameis S. H., Lai M.C., Mulsant B. H., Szatmari P. (2020). Coping, fostering resilience, and driving care innovation foric people and their families during the COVID-19 pandemic and beyond. ,,Molecular Autism”, vol.11(1), s.61-70.
• Baweja R., Brown S.L., Edwards E.M., Murray M.J. (2021). COVID-19 pandemic and impact onpatients with autism spectrum disorder. ,,Journal of Autism Developmental Disorders”, vol. 52, s.473–482.
• Chevallier C., Kohls G., Troiani V., Brodkin E.S., Schultz R.T. (2012). The social motivation theory of autism.,,Trends in Cognitive Sciences”, vol.16, s. 231–239.
• Clark P., Rutter M. (1979). Task difficulty and task performance in autistic children. ,,Journal of Child Psychology and Psychiatry”, vol.20, s. 271-285.
• Colizzi M., et al.(2020). Psychosocial and Behavioral Impact of COVID-19 in Autism Spectrum Disorder: An Online Parent Survey. ,,Brain Sciences”, vol. 10, s. 341.
• Deb S.S., Retzer A., Roy M., Acharya R., Limbu B., Roy A. (2020). The effectiveness of parent training for children with autism spectrum disorder: a systematic review and meta-analyses. ,,BMC Psychiatry”, vol.20(1), s.2-24.
• Eshraghi A.A, Li C., Alessandri M., Messinger D.S., Eshraghi S.R., Mittal R., Armstrong F.D. (2020). COVID-19: overcoming the challenges faced by individuals with autism and their families. ,,Lancet Psychiatry”, vol.7(6), s.481-483.
• Ferguson E.F., Jimenez-Munoz M., Feerst H., Vernon T.V. (2021). Predictors of satisfaction with autism treatment services during Covid-19. ,,Journal of autism and developmental disorders”, vol.52, s.3686-3697.
• Huang S.J., Sun T., Zhu Y.N., Song S.S., Zhang J.J., Huang L.J., Chen Q., Peng G.Y., Zhao D.M., Yu H., et al. (2021). Impact of the COVID-19 pandemic on children with asd and their families: An online survey in China. ,,Psychology Research Behavior Management”, vol. 14, s. 289–297.
• Ingersoll B., Berger N. I. (2015). Parent engagement with a tele- health-based parent-mediated intervention program for children with autism spectrum disorders: Predictors of program use and parent outcomes. ,,Journal of Medical Internet Research”, vol.17(10), s. 227.
• Koegel R., Mentis M. (1985). Motivation in childhood autism: can they or won’t they? ,,Journal of Child Psychology and Psychiatry”, vol.26(2), s.185-191.
• Kurzrok J., McBride E., Grossman R.B.. (2021). Autism-specific parenting self-efficacy: an
• examination of the role of parent-reported intervention involvement, satisfaction with intervention-related training, and caregiver burden. ,,Autism”, vol. 25, s. 1395–1408.
• Latzer I. T., Leitner Y., Karnieli-Miller O.(2021). Core experiences of parents of children with autism during the COVID-19 pandemic lockdown. ,,Autism”, vol. 25 (4), s. 1047- 1059.
• MacMillan D. L. (1971). The problem of motivation in the education of the mentally retarded. ,,Exceptional Children”, vol. 37,s. 579-586.
• Maddox B. B., Crabbe S., Beidas R. S., Brookman-Frazee L., Cannuscio C. C., Miller J. S., Nicolaidis C., Mandell D. S. (2020). I wouldn’t know where to start: Perspectives from clini- cians, agency leaders, and autistic adults on improving community mental health services for autistic adults. ,,Autism”, vol.24(4), s.919–930.
• Menahem S., Halasz G. (2000). Parental non-compliance: a paediatric dilemma. A medical and psychodynamic perspective. ,,Child Care Health and Development”, vol.26(1),s. 61-72.
• Mutluer T., DoenyasC. , Genc H.A. (2020). Behavioral implications of the COVID-19 process for autism spectrum disorder, and individuals’ comprehension of and reactions to the pandemic conditions. ,,Frontiers in Psychiatry”, vol. 11: 561882.
• Narzisi A. (2020). Handle the autism spectrum condition during coronavirus (COVID-19) Stay at Home Period: ten tips for helping parents and caregivers of young children. ,,Brain Sciences”, vol.10(4), s.207.
• NIK o wsparciu osób z autyzmem i zespołem Aspergera w przygotowaniu do samodzielnego funkcjonowania (2020)
• https://www.nik.gov.pl/aktualnosci/wsparcie-osob-z-autyzmem-i-zespolem-aspergera.html (16.12.2022).
• Ogólnopolski Spis Autyzmu Sytuacja młodzieży i dorosłych z autyzmem w Polsce (2016)
• http://www.spisautyzmu.pl/index_files/raport_OSA.pdf (16.12.2022).
• Rilveria J.R. (2022). Understanding the secondary system of therapeutic alliance in autism interventions from the perspectives of parents and caregivers.,,International journal of Child Care and Education Policy”, vol.16(1),s.2-24.
• Rodda M. (1977). Language and language-disordered children. ,,Bulletin of the British Psychological Society”, vol. 30, s.139-142.
• Rogers S. J., Vismara L. A. (2008). Evidence-based comprehensive treatments for early autism. ,,Journal of Clinical Child and Adolescent Psychology”, vol. 37, s. 8–38.
• Runco M. A., Schreibman L. (1983). Parental judgments of behavior therapy efficacy with autistic children: A social validation. ,,Journal of Autism and Developmental Disorders”, vol. 13, s. 237–248.
• Saliverou M., Georgiadi M., Tomprou D.M., Loizidou-Ieridou N., Plexousakis S. (2021). The Impact of COVID-19 Pandemic Containment Measures on Families and Children with Moderate and High- Functioning ASD (Autism Spectrum Disorder). ,,Education Sciences”, vol. 11(12),s.783.
• Stankovic M., Jelena S., Stankovic M., Shih A., Stojanovic A., Stankovic S. (2020). The Serbian Experience of Challenges of Parenting Children with Autism Spectrum Disorders during the COVID-19 Pandemic and the State of Emergency with the Police Lockdown.,,European Child and Adolescent Psychiatry”, vol.31(4), s.693-698.
• Solomon D., Soares N. (2020). Telehealth approaches to care coordination in autism spectrum disorder.,,Interprofessional care coordination for pediatric autism spectrum disorder”, vol.24, s. 289–306.
• Sofronoff K., Farbotko M. (2002). The effectiveness of parent management training to increase self-efficacy in parents of children with Asperger syndrome. ,,Autism”, vol. 6, s.271–286.
• Ślifirczyk A., Krajewska-Kułak E., Krukowska M., Maciorkowska E. (2019). Knowledge of parents of children with autism from Poland, Belarus and France concerning their child’s condition. ,,Health Problems of Civilization”, vol.13(2), s.114-122.
• Tint A., Maughan A. L., Weiss J. A. (2017). Community participation of youth with intellectual disability and autism spectrum dis- order. ,,Journal of Intellectual Disability Research”, vol. 61(2), s. 168–180.
• Tokatly Latzer I., Leitner Y., Karnieli-Miller O. (2021). Core Experiences of Parents of Children with Autism during the COVID-19 Pandemic Lockdown. ,,Autism”, vol. 25(4), s. 1047-1059.
• White S. W., Stoppelbein L., Scott H., Spain, D. (2021b). It took a pandemic: Perspectives on impact, stress, and telehealth from caregivers of people with autism. ,,Research in Developmental Disabilities”, vol.113, 103938.

Identifiers

DOI

10.21697/fp.2023.1.18

Biblioteka Nauki

59346024