Wyniki wyszukiwania - Biblioteka Nauki

1

Child with Down Syndrome in a peer group.

100%

Jędrzejowska A.

Interdyscyplinarne Konteksty Pedagogiki Specjalnej

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2019

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nr 27

PL

Agnieszka Jędrzejowska, Child with Down Syndrome in a peer group. Interdisciplinary Contexts of Special Pedagogy, no. 27, Poznań 2019. Pp. 351–372.Adam Mickiewicz University Press. ISSN 2300-391X. e-ISSN 2658-283X. DOI: https://doi.org/10.14746/ikps.2019.27.16 The attitude towards people with disabilities has changed over the last century. Both deinstitutionalisation as well as integration and normalisation allowed many people with intellectual disabilities to improve their social situation. An example of such a systemic solution supporting the development of disabled persons are integration groups. The subject of this article is a report from a pilot study on the functioning of a group of children with Down syndrome within an integration group. The objective of this study was the presentation of the reasonability of inclusion within the integration group of children with Down’s Syndrome (with the homogeneous dysfunction). Observation and sociometric tests covered children with Down syndrome from two integration groups from kindergarten no. 109 in Wrocław, Poland. I consider the essence of integration, following A. Maciarz, to be the feeling of social bonds experienced by a disabled individual, a sense of belonging to a group, as well as the conviction that one is accepted by it, despite the fact that the standards adopted by their community are not always and not fully met by them. The research was carried out for six months in a kindergarten where I was a special educator.

2

Development of Walking and Self-sufficiency Ability Related to Nutrition among People with Down Syndrome

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Brantmüller É. , Gyuró M. , Karácsony I.

Practice and Theory in Systems of Education

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2015

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tom 10

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nr 2

165-176

EN

Development of the walking ability and self-care of patients with Down syndrome is affected by their body weight determining their lifestyle to a great extent. Objectives: The study aimed at the determination of body mass index for persons living in residential institutions and families, exploration its impact on walking and self-care as two, objective factors of life quality. Method: Data collection of persons aged 3-35 with Down syndrome living in families covered seven counties, while those of living in residential institutions covered thirteen counties in Hungary. In the 183 cases studied 76 people in residential institutions, 107 people lived in families. The cross-sectional study was processed by non-random sample selection. The questionnaires were filled out by health visitors and care takers edited by their own. Results: 50.6% of adults and 26.1% of children belonged to the overweight or obese category. Their residence showed a significant correlation with the body mass index (p< 0.001). Overweight and obese persons in families, while thin ones were more prevalent in institutions. Regarding the walking ability and self-care of the persons living in families a significantly higher level of development was achieved (p< 0.001). Walking ability (p = 0.001) and self-care (p = 0,008) were worsened by less body weight significantly, while overweight or obesity influenced it less negatively. Discussion: The claim is not further acceptable whereas persons with Down syndrome are more prone to obesity than average people. However unfavourable weight gain in adults draws attention to the necessity to a healthy diet and regular exercise. The people living in residential institutions with significantly lower body mass index and the associated low development of walking ability and self-care envisages an urgent reform of residential institutions. Life in the institutions negatively affects the walking ability and self-care, and thus significantly reduces the quality of life of persons with Down's syndrome.

3

Potencjał intelektualny uczniów z zespołem Downa i orzeczoną niepełnosprawnością intelektualną w opinii ich rodziców

92%

Popowska K.

Kultura-Społeczeństwo-Edukacja

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2020

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tom 18

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nr 2

393-396

PL

Research was conducted to find out about the parents’ opinions on the intellectual potential of their children with Down syndrome and diagnosed intellectual disability studying in 4–8 grades of common, integration and special schools. Additionally, the factors determining the respondents’ opinions were analyzed. The paper uses the author’s questionnaire was placed on groups for parents of children with Down syndrome on the social network site Facebook. In addition, surveys were sent by e-mail to the primary school districts and non-governmental organizations that help children with Down syndrome. Fifty two questionnaires were collected. The results indicate that, despite intellectual disability, parents recognize the intellectual potential of their children. It can be assumed that assessments of the intellectual potential of students with Down syndrome and diagnosed intellectual disability are determined by their siblings in the intellectual norm, gender, using verbal speech, communication skills, social skills and opinions of their parents about their successes in school and progress as a result of the therapy.

4

Intellectual potential of pupils with Down syndrome and diagnosed intellectual disability in the opinion of their parents

92%

Popowska K.

Kultura-Społeczeństwo-Edukacja

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2020

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tom 18

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nr 2

397-410

EN

Research was conducted to find out about the parents’ opinions on the intellectual potential of their children with Down syndrome and diagnosed intellectual disability studying in 4–8 grades of common, integration and special schools. Additionally, the factors determining the respondents’ opinions were analyzed. The paper uses the author’s questionnaire was placed on groups for parents of children with Down syndrome on the social network site Facebook. In addition, surveys were sent by e-mail to the primary school districts and non-governmental organizations that help children with Down syndrome. Fifty two questionnaires were collected. The results indicate that, despite intellectual disability, parents recognize the intellectual potential of their children. It can be assumed that assessments of the intellectual potential of students with Down syndrome and diagnosed intellectual disability are determined by their siblings in the intellectual norm, gender, using verbal speech, communication skills, social skills and opinions of their parents about their successes in school and progress as a result of the therapy.

5

Missed Down Syndrome and Congenital Heart Defect in Prenatal Ultrasound (Us) - Malpractice or Not? Opinions of 12 Experts

92%

Respondek-Liberska M.

Prenatal Cardiology

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2015

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tom 5

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nr 1

19-25

EN

An example of missed Down syndrome with congenital heart defect by prenatal ultrasound evaluation was presented. A jury of 12 physicians, experts in prenatal ultrasonography and echocardiography were asked in questionare was this malpractice or not. The answers were very different. The results of the questionaires were discussed with the background to the selected data from Eurocat, from Polish National Prenatal Cardiac Registry, from Polish Registry of Congenital Malformations by 2nd year of life, and financial data of the Polish Prenatal Program in Lodz Region. Should we increase the cost of screening or the cost of ultrasound and echo training ? Or just provide patients with better knowledge regarding the differences between expertise of primary care obstetricians and experts in referral centers

6

Zabawa we wczesnej terapii logopedycznej u dzieci z zespołem Downa

92%

Kaptur E.

Poznańskie Studia Polonistyczne. Seria Językoznawcza

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2019

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tom 26

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nr 2

87-101

EN

The concept of early speech therapy by a team of therapists of different specializations, including a speech and language pathologist, assumes a holistic approach to an infant’s development. Children with Down syndrome require the help of a speech and language pathologist since the first day of their lives. The article describes activating the child’s speech by incorporating games into the therapy.

7

Budowanie planu ruchu artykulacyjnego u dzieci z zespołem Downanu ruchu artykulacyjnego u dzieci z zespołem Downa

92%

Kuśnierz M. , Sedivy-Mączka K.

Poznańskie Studia Polonistyczne. Seria Językoznawcza

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2019

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tom 26

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nr 2

115-125

EN

The authors of the article present two techniques supporting the development of articulation in children with Down syndrome: Articulation Gestures and Phoneme Manual Facilitation. Using their own clinical experience and referring to the latest neurobiological knowledge and subject literature, they justify the importance and, in some cases, the need to apply these techniques in speech therapy of children with trisomy 21. The text also presents three individual cases of children with Down syndrome of different ages who have been diagnosed with profound speech delay.

8

Ego-Resiliency and Parental Satisfaction Among Parents of Children with Down Syndrome

81%

Kózka A. , Przybyła-Basista H.

The New Educational Review

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2017

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tom 48

239-249

EN

Parents of children with Down syndrome face many challenges related to their children’s disability. They manage to raise their children primarily thanks to their internal resources, protective psychological traits and help from other people. The aim of this study was to investigate the level of ego-resiliency as an important personality trait in a group of mothers and fathers of children with Down syndrome. The relationship between ego-resiliency and parental satisfaction was also studied. The sample consisted of 126 parents (75 mothers and 51 fathers). Our results show that there is no difference in the level of ego-resiliency between mothers and fathers of children with Down syndrome. Nevertheless, it is noticed that there is a difference in perceived stress, psychological well-being and some aspects of parental satisfaction between parents with high and low levels of ego-resiliency. These results give an interesting insight into the internal func- tioning of parents of children with Down syndrome.

9

The relationships between perceived stress and psychological well-being among mothers and fathers of children with Down syndrome

81%

Kózka A. , Przybyła-Basista H.

The New Educational Review

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2016

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tom 44

285-294

EN

The aim of this study was to investigate the relationship between perceived stress and psychological well-being among parents of children with down syndrome. The relationship between perceiving one’s parenthood and well-being was also studied. The sample consisted of 126 parents (75 mothers and 51 fathers, aged 25-69) of children with down syndrome. our results show that ego-resiliency is a partial mediator of the relationship between perceived stress and psychological well-being. Moreover, there is a difference in well-being between parents who perceive their parenthood as a burden or challenge, and parents who report happiness and satisfaction.

10

Umiejętności komunikacyjne dzieci z zespołem Downa

80%

JĘDRZEJOWSKA A.

Interdyscyplinarne Konteksty Pedagogiki Specjalnej

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2018

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nr 22

201-218

EN

Agnieszka Jędrzejowska, Umiejętności komunikacyjne dzieci z zespołem Downa [Communication skills of children with Down Syndrome]. Interdyscyplinarne Konteksty Pedagogiki Specjalnej, nr 22, Poznań 2018. Pp. 201-218. Adam Mickiewicz University Press. ISSN 2300-391X. DOI: https://doi.org/10.14746/ikps.2018.22.12 The purpose of this article is to present the results of research concern setting of functional cooperation with the interlocutor in children with Down syndrome in a peer group. Analysis of the results indicates the relationship between methods of therapy and development of children with Down syndrome. The methods of Alterantive and Augmentative Communication (AAC) are important in achieving success in building relationships for children with problems with verbal communication. Secondly, peer group is important to increase social skills. This research show that children with Downe syndrome need similar friends. This leads to the coclussion that group with homogeneous disability is area of development.

11

Proces adaptacji rodziców do roli rodzicielskiej dziecka z zespołem Downa jako strategia radzenia sobie z sytuacją stresową

80%

Kaliszewska K.

Interdyscyplinarne Konteksty Pedagogiki Specjalnej

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2017

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nr 17

71-98

EN

The process of adaptation to the role of a parent of a child with Down Syndrome is very difficult, multi-staged and stress-causing both for mothers and fathers (Będkowska-Heine, 2003; Kościelska, 1998; Liberska and Matuszewska, 2011; Żyta, 2004). Coping with parental stress is a constant challenge for mothers and fathers of a child with Down syndrome and it increases the significance of different types of social support. The choice of the coping strategy can improve the parents’ cognitive abilities and competences of emotional and behavioural control and it also facilitates a more positive assessment of their intellectually disabled child (Turnbull et al., 1993). If parents choose a more adaptive, problem-focused coping strategy, adaptation to the parental role proceeds more fluently and more adequately (Abery, 2006; Lackaye and Margalit, 2006; Van Riper, 2003). In addition, it has been proven that receiving social support and using accommodative coping styles may boost the process of adaptation to the role of a parent of a child with Down syndrome (Atkinson et al., 1995; Dunst, Trivette and Deal, 1988; Florian, Krulik, 1991; Friedrich, Wilturner and Cohen, 1985; Lam and Mackenie, 2002; Sullivan, 2002; Van Riper, 1999).

PL

The process of adaptation to the role of a parent of a child with Down Syndrome is very difficult, multi-staged and stress-causing both for mothers and for fathers. Coping with the parental stress is a constant challenge for mothers and fathers of a child with Down syndrome and it increases the significance of different types of social support. The choice of coping strategy influences parents’ cognitive abilities, competences of emotional and behavioural regulation and facilities more positive assessment of their intellectually disabled child. In case parents choose more adaptive, that is problem – focused coping strategy the adjustment to parental role proceed more fluent, or even more adequate. In addition, it has been proven that receiving social support and using accommodative coping style may boost the process of adaptation to parental role of a child with Down syndrome.

12

“Life Goes On” – everyday life of children with Down syndrome and their families – selected aspects.

80%

Lipińska-Lokś J.

Interdyscyplinarne Konteksty Pedagogiki Specjalnej

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2020

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nr 31

PL

The birth of a child is a major event in family life, which makes parents take on an important role in their lives, characterised by new tasks, chief among which are the care and upbringing of their offspring. Unfortunately, in many families, some factors emerge that may affect their functioning, disrupt the course of family life, and leave a permanent mark on the family’s history. Such a situation can be difficult for many –and many parents find the process of accepting a child with a disability (Down syndrome) and themselves as parents of a child with Down syndrome a long and arduous journey, since taking care of a child, upbringing and supporting their development is an issue in itself, but also a challenge for parents. In many cases, both the child and their parents need support in their daily life, ensuring their high quality of life. The objective of this study is to outline the functioning of families of children with Down syndrome. Due to the complex nature of the issue at hand, only selected aspects of the functioning of families were diagnosed, showcasing the changes in the family life and its functioning as a result of the birth of children with Down syndrome. The study was based on qualitative methodologies, by analysing individual cases using interview technique and interview dispositions. The research group comprised 10 families of children with intellectual disabilities, and the interviewed group was made up of 10 mothers and 3 fathers in Zielona Góra.

13

Rehabilitacja dzieci z zespołem Downa – doświadczenia rodziców

70%

Chowaniec-Rylke A.

Barbarzyńca. Pismo Antropologiczne

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2018

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nr 23

102-117

EN

This article aims at discussing experiences of parents whose child was diagnosed with Down syndrome. It is based on a two-year fieldwork research in large cities in Poland that included in-depth interviews with families and discourse analysis of Internet sources. Down syndrome is one of the most common genetic disorders, caused by the presence of a third copy of chromosome 21. Due to genetic nature of the disorder, there is no known cure for DS. Low muscle tone and mental impairment are one of the most common symptoms. In this article I examine the role of the physiotherapy in lives of DS children parents. Their children may never be fully functioning intellectually, but in most cases their physical development, however delayed, will be successful. I argue that the mother dedication in finding new methods of improving their children physical abilities may be seen as a way of regaining agency and acceptance.

14

Rehabilitacja dzieci autystycznych oraz z zespołem Downa a poczucie obciążenia opiekunów / Rehabilitation of children with Down Syndrome and autism, and caregivers burden

70%

Zima J. , Kokot M. , Rymaszewska J.

Physiotherapy

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2011

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tom 19

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nr 3

9-18

EN

Child's upbringing is a major challenge, and in the case of children with a disability additional difficulty is to provide rehabilitation and support during abnormal development. Aim: evaluation of the burden of caregivers of children with Down syndrome and autism. The study was carried out in a group of 33 parents of children with Down Syndrome, 22 parents of autistic children who participated in rehabilitation and 15 parents of autistic children who did not participate in rehabilitation. Results and conclusions: the caregivers of children with Down Syndrome have a lower burden than caregivers of children with autism. Rehabilitation has a beneficial effect on the sense of burden in the caregivers of autistic children.

15

Poly (ADP-ribose) polymerase 1 expression in fibroblasts of Down syndrome subjects

70%

Salemi M. , Barone C. , Romano C. , Romano C. , Scavuzzo C. , Salluzzo M. , Tirolo C. , Cantarella R. , Ragalmuto A. , Paola S. , Bosco P.

Open Medicine

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2013

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tom 8

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nr 6

762-765

EN

Down syndrome (DS) is the most common chromosomal disorder. It is featured by intellectual disability and is caused by trisomy 21. People with DS can develop some traits of Alzheimer disease at an earlier age than subjects without trisomy 21. Apoptosis is a programmed cell death process under both normal physiological and pathological conditions. Poly (ADP-ribose) polymerase 1 is a mediator of programmed-necrotic cell death and appears to be also involved in the apoptosis. The aim of the present work was to detect the intracellular distribution of PARP-1 protein using immunofluorescence techniques and the expression of PARP-1 mRNA in culture of fibroblasts of DS subjects. The analysis of the intracellular distribution of PARP-1 show a signal at the nuclear level in about 75 % of the cells of DS subjects with a slight uniformly fluorescent cytoplasm. In contrast, in about 65% of the analyzed fibroblasts of the normal subjects only a slight fluorescent was found. These observations have been confirmed by PARP-1 gene mRNA expression evaluation. The data obtained from this study strengthen the hypothesis that the over-expression of PARP-1 gene could have a role in the activation of the apoptotic pathways acting in the neurodegenerative processes in DS.

16

„Welcome to the Real (?) World, Mr. Down”. Osoby z zespołem Downa w wirtualnej przestrzeni – obcy czy cyfrowi tubylcy?

70%

BIEGANOWSKA A.

Edukacja-Technika-Informatyka

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2015

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tom 6

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nr 4

209-215

PL

Celem artykułu jest ukazanie osób z zespołem Downa jako cyfrowych tubylców z powodzeniem odnajdujących się w wirtualnej przestrzeni. Nowe technologie w ostatnich kilku latach coraz częściej są wykorzystywane przez osoby niepełnosprawne i ich środowiska jako narzędzie upowszechniania rzetelnej i prawdziwej wiedzy na temat niepełnosprawności, co podkreślono w art. 8 ratyfikowanej przez Polskę przed dwoma laty Konwencji o prawach osób niepełnosprawnych. Internet dla wielu użytkowników bez względu na wiek nierzadko jest jedynym źródłem wiedzy o otaczającym świecie. Aby przekonać się o tym, jakie informacje na temat jednej z bardziej znanych niepełnosprawności może odnaleźć przeciętny użytkownik globalnej sieci, dokonano analizy form obecności osób z zespołem Downa w wirtualnej przestrzeni.

EN

The purpose of this article was to show if the people with Down Syndrome as a Digital Natives. Role of new technology has been noticed in promotion of positive image of disabled people and emphasized in ratified by Poland Disabled Law Convention. Internet is often the first and the only source of information about disability for an average person. Therefore it is very important that information available online is formal and reliable and so it doesn’t popularize prejudicial stereotype that still exists in social consciousness. The author of the article analyzed websites about Down’s Syndrome in regards to reliability and accuracy of the information. It also analyzed whether the image of people with DS popularized on the mentioned above websites is in agreement with the purposes of Disabled Law Convention.

17

Realization of the Phonemic-Syllabic Structure of Words in the Speech of Children with Intellectual Disability

70%

Mirecka U. , Kowal E.

Logopedia

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2018

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tom 47 EN

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nr 1

15-37

EN

Problems in the realization of the phonemic structure of the word (the composition and arrangements of phonemes) examined in relation to the syllabic structure of the word are presented in this article based on the example of the phenomena in the articulation of four children with moderate intellectual disability, aged 8–11 (two with cerebral palsy (CP) and two with Down syndrome). All children were diagnosed with oligophasia, three of them with dysglossia co-occurring with dysphagia, and the CP children – with dysarthria as well. In the articulation of the studied children there were paradigmatic disorders (in the form of distortion and substitution of phonemes) accompanied by syntagmatic disorders: changes in the word structure consisting in quantitative distortions (first of all reductions of the word structure resulting from the reduction of single phonemes and phoneme groups, the most frequent of the recorded phenomena being the simplification of consonant groups) and in qualitative distortions (mainly in the form of phoneme assimilation); a relatively large group consisted of words whose structure was considerably transformed as a result of the so-called combined changes.

18

Wsparcie społeczne jako czynnik ochronny dla rodziców dzieci z zespołem Downa

70%

Kózka A. , Przybyła-Basista H.

Społeczeństwo i Edukacja. Międzynarodowe Studia Humanistyczne

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2016

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nr 1(20)

139-150

EN

Results of many studies show that caring for a child with Down syndrome can be a source of burden. Parents of these children face many financial, medical, social and psychological challenges. The main objective of this study was to answer two questions: (a) whether perceived social support mediates the relationship between perceived stress and psychological well-being among parents of children with Down syndrome, (b) whether there is any difference in the level of perceived stress between parents who conceive their parenthood in different categories such as burden or satisfaction-happiness. Data were collected from a total sample of 126 parents (75 mothers and 51 fathers). Mediation analysis has shown that social support is a partial mediator between perceived stress and psychological well-being in the group of parents of children with Down syndrome. Moreover, parents who viewed their parenthood as a burden reported a lower level of perceived social support than parents who reported their parenthood as satisfaction-happiness. This study can be helpful in a better understanding of the role of social support in the process of raising a child with Down syndrome.

19

Wspieranie rodzin dzieci z niepełnosprawnością – perspektywa zmiany

58%

Żyta A. , Ćwirynkało K.

Wychowanie w Rodzinie

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2015

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tom XI

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nr (1/2015)

377-396

EN

The paper includes the summary of changes that take place in the field of social support given to families of children with disabilities in Poland and abroad. In the empirical part, using in-depth interviews, this study investigated the personal experiences of 11 mothers of children with Down syndrome within the social support system. Interview transcripts were qualitatively analysed with the usage of interpretative phenomenological analysis. Several themes emerged: support concentrated on a child with a disability as well as instrumental, informative, emotional support of parents (both formal and informal). Parents described various sources of the received support but also mentioned their shortcomings. The importance of adapting the modern model of supporting families of children with disabilities is highlighted and the implications of the findings are discussed.

PL

W artykule podsumowano dokonujące się w Polsce i na świecie zmiany w zakresie wsparcia społecznego udzielanego rodzinom dzieci z niepełnosprawnością. W części badawczej, wykorzystując wywiady pogłębione, prześledzono osobiste doświadczenia 11 matek dzieci z zespołem Downa, w kontekście systemu wsparcia społecznego. Transkrypcje wywiadów poddano obróbce jakościowej, z zastosowaniem interpretatywnej analizy fenomenologicznej. Wyłoniono kilka tematów: wsparcie skierowane na dziecko oraz wsparcie instrumentalne, informacyjne i emocjonalne, skierowane na rodziców (zarówno formalne, jak i nieformalne). Rodzice opisywali różne źródła otrzymywanego wsparcia, wskazując również na jego niedociągnięcia. Podkreślono duże znaczenie zaadaptowania nowoczesnego systemu wsparcia rodzin dzieci z niepełnosprawnością oraz wskazano na implikacje wynikające z zebranych danych.

20

Bilingvismus u dítěte s Downovým syndromem Kamila Homolková

58%

Homolková K.

Studie z aplikované lingvistiky - Studies in Applied Linguistics

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2020

|

tom 11

|

nr 2

7-15

EN

Currently, a half of the world population grows up in an environment with more than one spoken language, so the research on bilingualism has been quite extensive. However, just few of the studies are focused on individuals with communication disabilities or intellectual disorders, who acquire their mother (and other) tongues with more difficulty and slower. This contribution presents a case report on early verbal communication development of a four-year-old child with Down syndrome growing up in a bilingual Czech-German environment. This research was conducted mainly through longitudinal observation and video recording of the same activities, preferably at home, at the age of 24 to 48 months. To understand language exposure and language dominancy, the speech environment questionnaire (specifically the Beirut-Tours Questionnaire) was used. It shows that bilingualism could be beneficial for these individuals and it is not detrimental to their language acquisition. The key factors for a good acquisition of both (or more) languages are language exposure, intensity of contact with the languages, and good speech therapy, preferably in both languages.