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2008 | 3 | 2 | 141-148
Tytuł artykułu

An open future? The principle of autonomy within medical ‘codes of conduct’ versus the heteronomy effects of predictive medicine

Autorzy
Treść / Zawartość
Warianty tytułu
Języki publikacji
EN
Abstrakty
EN
Traditionally, the average code of conduct within Western health care starts from the autonomy of the patient. In addition, medicine today is ‘evidence based’ and the patient is an ‘informed consent’. Yet, the individual autonomy of the patient in health care is not simply enhancing today. Quite a few fundamental changes have and are currently at work within health care, which I will summarize here with the paradigm of predictive medicine. One of the characteristics of this paradigm is the increase of medical consults which are not autonomously chosen by an individual. For reasons of public health and diminishing of health risks or for reasons of prevention, on one hand we are dealing with ethical codes centered around the autonomy of patients and the face-to-face relations with health care workers, on the other, we are dealing with a society that takes an increasingly greater medical initiatives. Therefore, the question arises if predictive medicine confronts us with the limits of an ethical code as we know it today. Is there not an urgent need for a political code of conduct in health care?
Wydawca

Czasopismo
Rocznik
Tom
3
Numer
2
Strony
141-148
Opis fizyczny
Daty
wydano
2008-06-01
online
2008-04-09
Twórcy
  • Rehabilitation Sciences and Physiotherapy Ghent, Campus Heymans (UZ) 3B3, De Pintelaan 185, BE-Ghent, Belgium, ignaasdevisch@scarlet.be
Bibliografia
  • [1] De Vries G., Voorspellende geneeskunde. Ethische en politiek-filosofische problemen rond een nieuw paradigma, Ethische perspectieven, 1999, 9, 183–197 http://dx.doi.org/10.2143/EPN.9.3.516859[Crossref]
  • [2] King J.S., Moulton B.W., Rethinking Informed Consent: The Case for Shared Medical Decision-Making, American Journal of Law & Medicine, 2006, 32, 429–502
  • [3] Hedayat K.M., The possibility of a universal declaration of biomedical ethics, Journal of Medical Ethics, 2007, 33, 17–20 http://dx.doi.org/10.1136/jme.2006.016170[Crossref][WoS]
  • [4] Beauchamp C., Principles of biomedical ethics, Oxford, Oxford University Press, 2001, 454; Huibers A.K. and Spijker A., The autonomy paradox: predictive genetic testing and autonomy: three essential problems, Patient Education and Counseling, 1998, 35, 53–62
  • [5] Oliffe J., Thorne S., Hislop T., Gregory Msc, Armstrong E.A., ’Truth Telling’ and Cultural Assumptions in an Era of Informed Consent, Family & Community Health, 2007, 30, 5–15
  • [6] The ‘ethics in medicine’ from the University of Washington School of Medicine’ (http://depts.washington.edu/bioethx/topics/consent.html); see also Beauchamp C., Principles of biomedical ethics, Oxford, Oxford University Press, 2001, 79
  • [7] See King J.S., Moulton B.W., Rethinking Informed Consent: The Case for Shared Medical Decision-Making, American Journal of Law & Medicine, 2006, 32, 429–502
  • [8] Beauchamp C., Principles of biomedical ethics, Oxford, Oxford University Press, 2001, 454
  • [9] Horstman K., De Vries G.H., Haveman O., Gezondheidspolitiek in een risicocultuur: burgerschap in het tijdperk van de voorspellende geneeskunde, Den Haag, Rathenau Instituut, 1999, 106–107
  • [10] Kruijf A.F., Schroeder R.F., Toekomstscenario’s voorspellende geneeskunde, Den Haag, Rathenau, 1999, 144
  • [11] Nestle M., Food politics. How the food industry influences nutrition and health, Berkeley, University of California Press, 2002
  • [12] Kruijf A.F., Schroeder R.F., Toekomstscenario’s voorspellende geneeskunde, Den Haag, Rathenau, 1999, 143
  • [13] ’Trim u fit’ (1967), ’sportreal’ (1976), ’sport, zelfs ik doe het’ (1988) ‘Flash’ (2005). This list is only a selection; for further information see: http://www.minvws.nl/dossiers/sport/default.asp)
  • [14] Di Pietro M.L., Giuli A., Spagnolo A.G., Ethical implications of predictive DNA testing for hereditary breast cancer, Annals of Oncology, 2004, 15, i65–i70 http://dx.doi.org/10.1093/annonc/mdh662[Crossref]
  • [15] Di Pietro M.L., Giuli A., Spagnolo A.G., Ethical implications of predictive DNA testing for hereditary breast cancer, Annals of Oncology, 2004, 15, i65–i70 http://dx.doi.org/10.1093/annonc/mdh662[Crossref]
  • [16] Kruijf A.F., Schroeder R.F., Toekomstscenario’s voorspellende geneeskunde, Den Haag, Rathenau, 1999, 147
  • [17] ’Preventive maintenance for the human body’, brochure of The Institute for Predictive medicine’: http://www.predictivemedicine.us
  • [18] Horstman K., De Vries G.H., Haveman O., Gezondheidspolitiek in een risicocultuur: burgerschap in het tijdperk van de voorspellende geneeskunde, Den Haag, Rathenau Instituut, 1999, 36
  • [19] Kruijf A.F., Schroeder R.F., Toekomstscenario’s voorspellende geneeskunde, Den Haag, Rathenau, 1999, 147
  • [20] Macintyre A., Whose justice, which rationality?, Indiana, University of Notre Dame Press, 1988
  • [21] Beckman L., Are Genetic Self-Tests Dangerous? Assessing the Commercialization of Genetic Testing in Terms of Personal Autonomy, Theoretical Medicine and Bioethics, 2004, 25, 387–398 http://dx.doi.org/10.1007/s11017-004-2047-z[Crossref]
  • [22] Rogowski W., Current impact of gene technology on healthcare: A map of economic assessments, Health Policy, 2007, 80, 340–357 http://dx.doi.org/10.1016/j.healthpol.2006.03.009[WoS][Crossref]
  • [23] “Zum Fragen gehört außer dem Gefragten ein Befragtes. In der untersuchenden, d.h. spezifisch theoretischen Frage soll das Gefragte bestimmt und zu Begriff gebracht werden. Im Gefragten liegt dann als das eigentlich Intendierte das Erfragte, das, wobei das Fragen ins Ziel kommt. […] Das Eigentümliche dieser liegt darin, daß das Fragen sich zuvor nach all den genannten konstitutiven Charakteren der Frage selbst durchsichtig wird” (Heidegger M., Sein und Zeit, Tübingen, Max Niemayer Verlag, 1993, 5
  • [24] The World Medical Association Statement on Genetics and Medicine. Adopted by the WMA General Assembly, Santiago 2005: http://www.wma.net/e/policy/g11.htm
  • [25] Beauchamp B.(eds), New ethics for the public’s health, Oxford, Oxford University Press, 1999, 344
  • [26] Kruijf A.F., Schroeder R.F., Toekomstscenario’s voorspellende geneeskunde, Den Haag, Rathenau, 1999, 121 (my translation)
  • [27] Henn W., Schindelhauer-Deutscher H., Kommunikation genetischer Risiken aus der Sicht der humangenetischen Beratung: Erfordernisse und Probleme, Bundesgesundheitsblatt-Gesundheitsforschung-Gesundheitsschutz, 2007, 50, 174–180 http://dx.doi.org/10.1007/s00103-007-0138-5[Crossref]
  • [28] Summers C., Realities of decision-making and social issues: Implications for developing and implementing ethics guidelines, Science of The Total Environment, 1996, 184, 17–23 http://dx.doi.org/10.1016/0048-9697(95)04983-5[Crossref]
  • [29] Gaunt N., Practical approaches to creating a security culture, International Journal of Medical Informatics, 2000, 60, 151–157 http://dx.doi.org/10.1016/S1386-5056(00)00115-5[Crossref]
Typ dokumentu
Bibliografia
Identyfikatory
Identyfikator YADDA
bwmeta1.element.-psjd-doi-10_2478_s11536-008-0023-0
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